SCHED* SXSW 2011 has ended
Sunday, March 13 • 3:30pm - 4:30pm
Health Communities: Superheroes Who Need a Justice League

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Research shows online health communities (OHCs) offer extensive benefits to members. But the variance in quality and effectiveness is huge. And Pew Internet research shows only 52% of adults with multiple chronic illnesses go online for health information. A good OHC has the power to change lives. For many people, the worst day of their life is when they’re diagnosed; OHCs can provide respite, education and empowerment when members otherwise would feel alone. There’s as much demand for, say, an OHC on Raynaud's Phenomenon as there is for one on knitting. Yet while Ravelry is bustling, gorgeous and easy to navigate, good luck finding a useful forum about life with cold toes and hands. OHCs could be better. They need a governing board, or a set of principles to aspire to follow. I would lead a presentation on: Strategies for helping OHCs get around black hat SEO so they’re easier to find, especially by novices; Ways OHCs can partner with hospitals or other organizations, avoiding conflicts of interest while capitalizing on their financial stability and resources; Techniques for teaming with non-profits to extend reach; Ways to reach under-served populations, including people of color, families below the poverty level, rural communities and the aged; How to keep members long-term using better I.A. and usability; Using strategies of the biggest OHCs for niche OHCs

avatar for Jennifer Prokopy

Jennifer Prokopy

Founder/EditrixChronicBabe.comJenni is Founder and Editrix of ChronicBabe.com, an online resource for young women with chronic illness. An award-winning speaker, writer, and expert on healthy living, she shares her personal experience - and rallies the expertise of thousands of others... Read More →

Sunday March 13, 2011 3:30pm - 4:30pm
Hilton Garden Inn, Sabine 500 North IH 35

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